Skip to main content

Table 1 Characteristics of the people interviewed

From: Get this thing out of my body! Factors determining consent for translational oncology research: a qualitative research

Male/female

Age

Profile

Location

Means of recruitment

F

68

Artist

Nièvre

HEGPa

Breast cancer

F

50

Flight attendant

HEGP

Breast cancer

F

45

Consultant

Chinese/92

Refusal of radiotherapy

St Jo

Breast cancer

F

42

In nursing training

HEGP

Consultation for Lynch Syndrome

Genetic predisposition

M

55

Engineer

HEGP

Consultation for Lynch Syndrome

Genetic predisposition

Daughter deceased

M

77

Inspector General of a government department/retired

HEGP

Consultation for Lynch Syndrome

Polyposis in the family

M

46

Telephone sales technician,

Algerian-French

HEGP

Consultation for Lynch Syndrome

Genetic mutation + Cancer

M

29

Librarian

HEGP

Consultation for Lynch Syndrome

Genetic mutation

F

64

Military

Armed Forces Medical Service

HEGP

Consultation for Lynch Syndrome

Colon cancer + Genetic mutation

F

57

Early retirement (housewife)

Lives off investments

HEGP

Consultation for Lynch Syndrome

Genetic mutation

F

77

Retired

HEGP

Consultation for Lynch Syndrome

Several cancers

Genetic predisposition

"Expert patients" with cancer

M

65

Expert patient

Laryngeal cancer

M

50

Expert patient

Intestinal cancer

F

42

Expert patient

Breast cancer

F

55

Head of Association

Parent of a child with cancer

Computer/data/data mining/AI experts = 10 people

M

29

Artist and programming engineer

 

M

53

Banker

 

F

32

Artist

Ph.D. student in AI and artistic practice

Mother died of cancer

F

55

Researcher in

Health Economics

Public (academic)

F

29

Legal Officer

Start up on health ethics

F

48

Researcher in health economics

Private/worked in a cancer centre

F

40

Researcher in health geography

Academic

F

34

Doctoral student in Philosophy

Academic

M

35

Philosopher of Technology

Academic

M

24

Data analyst

Private university structure

Group of people living in poverty: 10 people

Sex

Age

Gender

Social situation

Living situation

Specific situation

F

62

F

RSAb

Lives alone

Helps migrants

F

65

F

Retired

Lives alone

Helps people in difficulty

F

66

F

Retired

Lives alone

 

M

58

F

AAHc

Lives alone

Disability

Under tutelage

Heart problems

M

67

H

Retired

Married with children

 

F

56

F

AAH

Married with children

Motor disability

F

68

F

Retired

Lives alone

 

F

69

F

Retired

Lives alone

 

M

64

H

Retired

Shelter

 

F

64

F

AAH

Shelter

History of cancer

  1. aHôpital Européen Georges-Pompidou
  2. bThe Revenu de Solidarité Active is a French welfare benefit aimed at reducing the barrier to return to work
  3. cThe Allocation aux Adultes Handicapés is a French welfare benefit for disabled adults