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Table 2 Evaluation questions 42-44 of the ACCE model

From: Genetics and primary care: where are we headed?

ELSi evaluation

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42

What is known about stigmatization, discrimination, privacy/confidentiality and personal/family social issues?

43

Are there legal issues regarding consent, ownership of data and/or samples, patents, licensing, proprietary testing, obligation to disclose, or reporting requirements?

44

What safeguards have been described and are these safeguards in place and effective?